Community, Care and a Cure
When the Myotonic Dystrophy Foundation (MDF) was started in 2007 their mission was “Care and A Cure.” That seemed so fitting because, as...
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annwoodburyofficia
- Nov 21
- 4 min
Anger, Caregiving, and Thanksgiving
At this time of Thanksgiving, we can get in overwhelm. “On top of doing all of the preparation myself, I’m supposed to be thankful?” This...
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annwoodburyofficia
- Nov 14
- 5 min
Caregiving and Thanksgiving
What are the effects of caregiver burnout? According to the 2022 Spring Edition of Helix, “Caring for a person…can take great emotional...
56 views0 comments
annwoodburyofficia
- Nov 7
- 4 min
National Caregiver Month
Celebrated every November, National Family Caregivers Month (NFCM) is a time to recognize and honor family caregivers across the country....
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annwoodburyofficia
- Oct 31
- 4 min
COMMON UNITY = COMMUNITY
“The Myotonic Dystrophy Foundation (MDF) is the leading global advocate helping patients and families navigate the myotonic dystrophy...
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annwoodburyofficia
- Oct 25
- 4 min
Palliative Care Services
Palliative Care is a newly discovered resource that is supporting my family’s health. The goal of palliative care is to help people with...
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annwoodburyofficia
- Oct 17
- 4 min
Sleep Apnea and DM1
Treating sleep apnea is so complicated for individuals with Myotonic Dystrophy (DM). The treatment also can vary from person to person....
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annwoodburyofficia
- Oct 10
- 5 min
Cognition and Myotonic Dystrophy
Going public with my posts and thoughts brings comments from others, once in a while someone disagrees. I recently had a lady comment on...
73 views1 comment
annwoodburyofficia
- Aug 30
- 4 min
Long-Distance Caregiving
Kent and I are in Irvine California for two weeks while Kent is getting some medical support. Even while we are gone we are still the...
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annwoodburyofficia
- Aug 28
- 5 min
Five Love Languages for those with DM
I found this article at my support group. It is written for those with dementia. But, I think that it speaks to those of us living with...
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annwoodburyofficia
- Aug 23
- 4 min
Two Hours a week (20 minutes a day) in Nature
Kent and I went to Irvine California the last week of June to an alternative cancer clinic. Kent’s cancer is currently under control so...
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annwoodburyofficia
- Aug 16
- 4 min
Blog Posts
I did a presentation for the Ohio support group last week about my family’s Myotonic Dystrophy (DM) journey and I got such positive...
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annwoodburyofficia
- Aug 8
- 4 min
Reality Check by Myotonic Dystrophy Expert Ann S Woodbury
I had quite the reality check this morning. For my part-time job I work in Salt Lake County advising consumers of safe food preservation...
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annwoodburyofficia
- Aug 1
- 4 min
DEVELOPING YOUR PERSONAL SELF-FULFILLMENT FORMULA by Myotonic Dystrophy Expert Ann S Woodbury
Extreme caregiving roles, such as a young mother, caring for someone with a cognitive impairment, caring for someone with a mental...
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annwoodburyofficia
- Jul 26
- 4 min
Perplexed by Myotonic Dystrophy Expert Ann S Woodbury
My family, 4 children (now adults) and husband, all have Myotonic Dystrophy (DM). They were diagnosed 25 years ago. Before I had my...
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annwoodburyofficia
- Jul 11
- 4 min
Laziness by Myotonic Dystrophy Expert Ann S Woodbury
While talking to a fellow Myotonic Dystrophy (DM) community member, we were discussing what appears to be laziness in her son. He has a...
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annwoodburyofficia
- Jun 27
- 5 min
Traveling with DM by Myotonic Dystrophy Expert Ann S Woodbury
A couple of weeks ago we went on vacation to Red Lodge Montana, just outside of Yellowstone. Michael, Chad, Kent and I all went in my...
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annwoodburyofficia
- Jun 21
- 4 min
Coaching by Myotonic Dystrophy Expert Ann S Woodbury
All four of our children (now adults) have Myotonic Dystrophy (DM). It is a Rare Disease and some of its characteristics are equally...
86 views0 comments
annwoodburyofficia
- Jun 14
- 3 min
Publicity and "Socks On" by Myotonic Dystrophy Expert Ann S Woodbury
In my efforts to raise awareness about Myotonic Dystrophy (DM) I am always told that when someone famous has it then there will be...
77 views0 comments
annwoodburyofficia
- Jun 6
- 4 min
Coaching - Mentoring by Myotonic Dystrophy Expert Ann S Woodbury
40+ years later, after raising 4 children with Myotonic Dystrophy (DM) I can finally say that I understand them. Raising them was very...
113 views0 comments