Unraveling the Challenges of Myotonic Dystrophy: Understanding the Diagnosis and Living with
Introduction Myotonic Dystrophy (DM) is a complex and often misunderstood genetic disorder that affects thousands of individuals...
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annwoodburyofficia
- Apr 20
- 5 min
Cluttering and DM
Cluttering and DM As a newborn Michael was in the NICU for just under a month due to respiratory problems. He came home on oxygen but was...
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annwoodburyofficia
- Mar 27
- 4 min
Conserving Energy with Myotonic Dystrophy
In my office I have a sign that says “I promise to be kind and gentle with myself and to honor myself with love and respect.” I look at...
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annwoodburyofficia
- Mar 21
- 4 min
Hygiene, Homeopathies, and Viruses
Ever since our children were young our family has been very diligent at seeing the dentist regularly. We have our teeth cleaned...
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annwoodburyofficia
- Mar 14
- 4 min
Letting Go
Living with family members with Myotonic Dystrophy (DM) can be confusing and scary. With the effects on the frontal lobe our loved ones...
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annwoodburyofficia
- Mar 7
- 4 min
Being There
When I had my first cataract removed, I couldn’t drive home and I couldn’t lift anything for 3 days. Kent had to take over driving and in...
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annwoodburyofficia
- Feb 28
- 5 min
DM and Cataracts
A week ago I had my cataract removed on my left eye. I’ll have the right eye done in two weeks. Wow, is it ever amazing how well I can...
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annwoodburyofficia
- Feb 21
- 4 min
Michael's 40th Birthday
Michael’s 40th birthday is actually this Saturday, the 25th. Happy Birthday to my empathic, kind Michael. Who would have thought that we...
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annwoodburyofficia
- Feb 13
- 4 min
Enneagram
I have gone back in to therapy, I have been having a lot of anxiety. All of Kent’s recent health crisis have been too much for my...
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annwoodburyofficia
- Feb 6
- 4 min
Yellow Butterflies
A few years ago I was reading a book E-Squared by Pam Grout. She teaches the reader to be aware of how we shape our own life. One...
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annwoodburyofficia
- Jan 30
- 4 min
ER and the In-between Place
Last month I had Kent in the ER (emergency room) two times, a day apart. On the 2nd visit, when his elevated heart rate returned even...
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annwoodburyofficia
- Jan 23
- 4 min
Keep Anesthesia Papers With You - Always
Recently we went to the gym to walk on the treadmill. We use their room with a big screen T.V. and watch what they are currently showing...
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annwoodburyofficia
- Jan 16
- 4 min
Repeated Episodes of Pneumonia
Starting a couple of months ago Michael and Chad both got sick and it settled immediately into their lungs. Our Physician’s Assistant...
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annwoodburyofficia
- Dec 5, 2022
- 4 min
Finding Others with DM
Finding others with our Rare Disease – Myotonic Dystrophy (DM) has been difficult. That means that having a supportive and understanding...
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annwoodburyofficia
- Nov 28, 2022
- 4 min
Community, Care and a Cure
When the Myotonic Dystrophy Foundation (MDF) was started in 2007 their mission was “Care and A Cure.” That seemed so fitting because, as...
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annwoodburyofficia
- Nov 21, 2022
- 4 min
Anger, Caregiving, and Thanksgiving
At this time of Thanksgiving, we can get in overwhelm. “On top of doing all of the preparation myself, I’m supposed to be thankful?” This...
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annwoodburyofficia
- Nov 14, 2022
- 5 min
Caregiving and Thanksgiving
What are the effects of caregiver burnout? According to the 2022 Spring Edition of Helix, “Caring for a person…can take great emotional...
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annwoodburyofficia
- Nov 7, 2022
- 4 min
National Caregiver Month
Celebrated every November, National Family Caregivers Month (NFCM) is a time to recognize and honor family caregivers across the country....
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annwoodburyofficia
- Oct 31, 2022
- 4 min
COMMON UNITY = COMMUNITY
“The Myotonic Dystrophy Foundation (MDF) is the leading global advocate helping patients and families navigate the myotonic dystrophy...
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annwoodburyofficia
- Oct 25, 2022
- 4 min
Palliative Care Services
Palliative Care is a newly discovered resource that is supporting my family’s health. The goal of palliative care is to help people with...
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