When I got up and looked at my text messages I saw one from Rily (today's caregiver), that he had sent at midnight. It said "I'm so sorry...

What is a support group? What are the benefits of attending one? How do I find the right group for me? Will people think less of me if I...

I have an acquaintance through the DM community, I’ll call her Sarah. Sarah is very frustrated with the cognitive effects of Myotonic...

On Dec. 28 Andrea, our 41 year old daughter, had her ablation done to treat the atrial flutter in her heart, which was diagnosed this...

When I graduated from college in 1980 (yes, I’m old) I graduated with a degree in the college of Social and Behavioral Science. I didn’t...

Being a coach to our Myotonic Dystrophy (DM) loved ones is new territory for most of us. I know from personal experience, it was very...

My family (husband and 4 children – now adults) are all diagnosed with Myotonic Dystrophy (DM). DM affects as many or more systems in the...

My children (now adults) all have a hard time waking up. Even going to bed is difficult for them but they have all eventually found...

We as caregivers end up in the role of helping our Myotonic Dystrophy (DM) family members. As we go through our day many things have...

I took my daughter – Andrea – to Stanford last week. We needed some help in pursuing “benefits” for her. It has been 1 ½ years since she...

The definition for marginalization is being treated as insignificant or peripheral. Being marginalized happens to many groups in our...

I had an unsettling dream last night. I dreamt that an extended family member asked me to put a presentation together for a big event. A...