annwoodburyofficia1 day ago4 minAbsent CaregiverWhen I got up and looked at my text messages I saw one from Rily (today's caregiver), that he had sent at midnight. It said "I'm so sorry...
annwoodburyofficiaMay 164 minSupport Groups by Myotonic Dystrophy Expert Ann S WoodburyWhat is a support group? What are the benefits of attending one? How do I find the right group for me? Will people think less of me if I...
annwoodburyofficiaMay 104 minCognitive Effects of DMI have an acquaintance through the DM community, I’ll call her Sarah. Sarah is very frustrated with the cognitive effects of Myotonic...
annwoodburyofficiaMar 255 minAndrea’s Heart Ablation for Atrial Flutter by Myotonic Dystrophy Expert Ann S WoodburyOn Dec. 28 Andrea, our 41 year old daughter, had her ablation done to treat the atrial flutter in her heart, which was diagnosed this...
annwoodburyofficiaMar 255 minAbleism by Myotonic Dystrophy Expert Ann S WoodburyWhen I graduated from college in 1980 (yes, I’m old) I graduated with a degree in the college of Social and Behavioral Science. I didn’t...
annwoodburyofficiaMar 255 minCoaching by Myotonic Dystrophy Expert Ann S WoodburyBeing a coach to our Myotonic Dystrophy (DM) loved ones is new territory for most of us. I know from personal experience, it was very...
annwoodburyofficiaMar 254 minHelp for my Family by Myotonic Dystrophy Expert Ann S WoodburyMy family (husband and 4 children – now adults) are all diagnosed with Myotonic Dystrophy (DM). DM affects as many or more systems in the...
annwoodburyofficiaMar 255 minSupport by Myotonic Dystrophy Expert Ann S WoodburyMy children (now adults) all have a hard time waking up. Even going to bed is difficult for them but they have all eventually found...
annwoodburyofficiaMar 255 minHelp and Resources by Myotonic Dystrophy Expert Ann S WoodburyWe as caregivers end up in the role of helping our Myotonic Dystrophy (DM) family members. As we go through our day many things have...
annwoodburyofficiaMar 254 minStanford Neurology Experience by Myotonic Dystrophy Expert Ann S WoodburyI took my daughter – Andrea – to Stanford last week. We needed some help in pursuing “benefits” for her. It has been 1 ½ years since she...
annwoodburyofficiaMar 255 minOn Being Marginalized by Myotonic Dystrophy Expert Ann S WoodburyThe definition for marginalization is being treated as insignificant or peripheral. Being marginalized happens to many groups in our...
annwoodburyofficiaMar 115 minTalking to Extended Family by Myotonic Dystrophy Expert Ann S WoodburyI had an unsettling dream last night. I dreamt that an extended family member asked me to put a presentation together for a big event. A...