ER and the In-between Place
Last month I had Kent in the ER (emergency room) two times, a day apart. On the 2nd visit, when his elevated heart rate returned even...
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annwoodburyofficia
- Jan 23
- 4 min
Keep Anesthesia Papers With You - Always
Recently we went to the gym to walk on the treadmill. We use their room with a big screen T.V. and watch what they are currently showing...
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annwoodburyofficia
- Jan 16
- 4 min
Repeated Episodes of Pneumonia
Starting a couple of months ago Michael and Chad both got sick and it settled immediately into their lungs. Our Physician’s Assistant...
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annwoodburyofficia
- Dec 5, 2022
- 4 min
Finding Others with DM
Finding others with our Rare Disease – Myotonic Dystrophy (DM) has been difficult. That means that having a supportive and understanding...
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annwoodburyofficia
- Nov 28, 2022
- 4 min
Community, Care and a Cure
When the Myotonic Dystrophy Foundation (MDF) was started in 2007 their mission was “Care and A Cure.” That seemed so fitting because, as...
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annwoodburyofficia
- Nov 21, 2022
- 4 min
Anger, Caregiving, and Thanksgiving
At this time of Thanksgiving, we can get in overwhelm. “On top of doing all of the preparation myself, I’m supposed to be thankful?” This...
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annwoodburyofficia
- Nov 14, 2022
- 5 min
Caregiving and Thanksgiving
What are the effects of caregiver burnout? According to the 2022 Spring Edition of Helix, “Caring for a person…can take great emotional...
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annwoodburyofficia
- Nov 7, 2022
- 4 min
National Caregiver Month
Celebrated every November, National Family Caregivers Month (NFCM) is a time to recognize and honor family caregivers across the country....
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annwoodburyofficia
- Oct 31, 2022
- 4 min
COMMON UNITY = COMMUNITY
“The Myotonic Dystrophy Foundation (MDF) is the leading global advocate helping patients and families navigate the myotonic dystrophy...
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annwoodburyofficia
- Oct 25, 2022
- 4 min
Palliative Care Services
Palliative Care is a newly discovered resource that is supporting my family’s health. The goal of palliative care is to help people with...
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annwoodburyofficia
- Oct 17, 2022
- 4 min
Sleep Apnea and DM1
Treating sleep apnea is so complicated for individuals with Myotonic Dystrophy (DM). The treatment also can vary from person to person....
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annwoodburyofficia
- Oct 10, 2022
- 5 min
Cognition and Myotonic Dystrophy
Going public with my posts and thoughts brings comments from others, once in a while someone disagrees. I recently had a lady comment on...
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annwoodburyofficia
- Aug 30, 2022
- 4 min
Long-Distance Caregiving
Kent and I are in Irvine California for two weeks while Kent is getting some medical support. Even while we are gone we are still the...
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annwoodburyofficia
- Aug 28, 2022
- 5 min
Five Love Languages for those with DM
I found this article at my support group. It is written for those with dementia. But, I think that it speaks to those of us living with...
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annwoodburyofficia
- Aug 23, 2022
- 4 min
Two Hours a week (20 minutes a day) in Nature
Kent and I went to Irvine California the last week of June to an alternative cancer clinic. Kent’s cancer is currently under control so...
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annwoodburyofficia
- Aug 16, 2022
- 4 min
Blog Posts
I did a presentation for the Ohio support group last week about my family’s Myotonic Dystrophy (DM) journey and I got such positive...
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annwoodburyofficia
- Aug 8, 2022
- 4 min
Reality Check by Myotonic Dystrophy Expert Ann S Woodbury
I had quite the reality check this morning. For my part-time job I work in Salt Lake County advising consumers of safe food preservation...
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annwoodburyofficia
- Aug 1, 2022
- 4 min
DEVELOPING YOUR PERSONAL SELF-FULFILLMENT FORMULA by Myotonic Dystrophy Expert Ann S Woodbury
Extreme caregiving roles, such as a young mother, caring for someone with a cognitive impairment, caring for someone with a mental...
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annwoodburyofficia
- Jul 26, 2022
- 4 min
Perplexed by Myotonic Dystrophy Expert Ann S Woodbury
My family, 4 children (now adults) and husband, all have Myotonic Dystrophy (DM). They were diagnosed 25 years ago. Before I had my...
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annwoodburyofficia
- Jul 11, 2022
- 4 min
Laziness by Myotonic Dystrophy Expert Ann S Woodbury
While talking to a fellow Myotonic Dystrophy (DM) community member, we were discussing what appears to be laziness in her son. He has a...
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