Reality Check by Myotonic Dystrophy Expert Ann S Woodbury
I had quite the reality check this morning. For my part-time job I work in Salt Lake County advising consumers of safe food preservation...
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annwoodburyofficia
- Aug 1
- 4 min
DEVELOPING YOUR PERSONAL SELF-FULFILLMENT FORMULA by Myotonic Dystrophy Expert Ann S Woodbury
Extreme caregiving roles, such as a young mother, caring for someone with a cognitive impairment, caring for someone with a mental...
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annwoodburyofficia
- Jul 26
- 4 min
Perplexed by Myotonic Dystrophy Expert Ann S Woodbury
My family, 4 children (now adults) and husband, all have Myotonic Dystrophy (DM). They were diagnosed 25 years ago. Before I had my...
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annwoodburyofficia
- Jul 11
- 4 min
Laziness by Myotonic Dystrophy Expert Ann S Woodbury
While talking to a fellow Myotonic Dystrophy (DM) community member, we were discussing what appears to be laziness in her son. He has a...
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annwoodburyofficia
- Jun 27
- 5 min
Traveling with DM by Myotonic Dystrophy Expert Ann S Woodbury
A couple of weeks ago we went on vacation to Red Lodge Montana, just outside of Yellowstone. Michael, Chad, Kent and I all went in my...
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annwoodburyofficia
- Jun 21
- 4 min
Coaching by Myotonic Dystrophy Expert Ann S Woodbury
All four of our children (now adults) have Myotonic Dystrophy (DM). It is a Rare Disease and some of its characteristics are equally...
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annwoodburyofficia
- Jun 14
- 3 min
Publicity and "Socks On" by Myotonic Dystrophy Expert Ann S Woodbury
In my efforts to raise awareness about Myotonic Dystrophy (DM) I am always told that when someone famous has it then there will be...
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annwoodburyofficia
- Jun 6
- 4 min
Coaching - Mentoring by Myotonic Dystrophy Expert Ann S Woodbury
40+ years later, after raising 4 children with Myotonic Dystrophy (DM) I can finally say that I understand them. Raising them was very...
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annwoodburyofficia
- May 30
- 4 min
Doing What Needs to Be Done
I can only imagine that when you have a child that has Down’s syndrome, Batten disease, or many of the other disorders that affect both...
129 views1 comment
annwoodburyofficia
- May 23
- 4 min
Absent Caregiver
When I got up and looked at my text messages I saw one from Rily (today's caregiver), that he had sent at midnight. It said "I'm so sorry...
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annwoodburyofficia
- May 16
- 4 min
Support Groups by Myotonic Dystrophy Expert Ann S Woodbury
What is a support group? What are the benefits of attending one? How do I find the right group for me? Will people think less of me if I...
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annwoodburyofficia
- May 9
- 4 min
Cognitive Effects of DM
I have an acquaintance through the DM community, I’ll call her Sarah. Sarah is very frustrated with the cognitive effects of Myotonic...
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annwoodburyofficia
- Mar 24
- 5 min
Andrea’s Heart Ablation for Atrial Flutter by Myotonic Dystrophy Expert Ann S Woodbury
On Dec. 28 Andrea, our 41 year old daughter, had her ablation done to treat the atrial flutter in her heart, which was diagnosed this...
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annwoodburyofficia
- Mar 24
- 5 min
Ableism by Myotonic Dystrophy Expert Ann S Woodbury
When I graduated from college in 1980 (yes, I’m old) I graduated with a degree in the college of Social and Behavioral Science. I didn’t...
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annwoodburyofficia
- Mar 24
- 5 min
Coaching by Myotonic Dystrophy Expert Ann S Woodbury
Being a coach to our Myotonic Dystrophy (DM) loved ones is new territory for most of us. I know from personal experience, it was very...
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annwoodburyofficia
- Mar 24
- 4 min
Help for my Family by Myotonic Dystrophy Expert Ann S Woodbury
My family (husband and 4 children – now adults) are all diagnosed with Myotonic Dystrophy (DM). DM affects as many or more systems in the...
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annwoodburyofficia
- Mar 24
- 5 min
Support by Myotonic Dystrophy Expert Ann S Woodbury
My children (now adults) all have a hard time waking up. Even going to bed is difficult for them but they have all eventually found...
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annwoodburyofficia
- Mar 24
- 5 min
Help and Resources by Myotonic Dystrophy Expert Ann S Woodbury
We as caregivers end up in the role of helping our Myotonic Dystrophy (DM) family members. As we go through our day many things have...
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annwoodburyofficia
- Mar 24
- 4 min
Stanford Neurology Experience by Myotonic Dystrophy Expert Ann S Woodbury
I took my daughter – Andrea – to Stanford last week. We needed some help in pursuing “benefits” for her. It has been 1 ½ years since she...
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annwoodburyofficia
- Mar 24
- 5 min
On Being Marginalized by Myotonic Dystrophy Expert Ann S Woodbury
The definition for marginalization is being treated as insignificant or peripheral. Being marginalized happens to many groups in our...
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