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Myotonic Dystrophy Coach

Ann Woodbury has always had a lot of energy and passion, especially where her family is concerned. So, when her husband and four children were diagnosed with a rare disease – Myotonic Dystrophy (DM) — in 1998, she channeled her energy and passion into understanding the disease and its effects on her family.

Ann has a Bachelor’s degree in Family and Child Relationships from the University of Utah. She is a part-time specialist for Salt Lake County Extension, answering nutrition and food safety questions from the public.

In addition, Ann ran a statewide support group for people with DM for 10 years. She is passionate about educating others, both caregivers and sufferers, about DM and its devastating effects.

Ann’s hobbies include  practicing yoga, watching select TV series with her husband, going to plays, making jewelry, cooking foods with good taste and nutrition, yard work and gardening

Ann will be happy to speak to PTA meetings, wellness groups, MOMs groups, teacher’s associations, chamber, Kiwanis. etc.


Topics for Keynotes, Lunch and Learns, Workshops;


  • The Ann Woodbury Story- The Hidden Disorder that Nearly Destroyed My Family

  • Do Your Children Have Myotonic Muscular Dystrophy? What are the Symptoms and What Can You Do About It?

  • Do you need help figuring out your own “Self-care Routine” so that you can be more powerful with the rest of your day?

  • Are you Afraid that you are Enabling Your Children? Learn the Difference between Enabling and Empowering


  My Coaching


Do you find Myotonic Dystrophy confusing or difficult to manage?

Myotonic Dystrophy Expert Ann Woodbury has worked with DM individuals and support groups for 45 years. Ann is now making some of her valuable time available for coaching you.

Please click on the link below to receive a complimentary 15 minute session with Ann and to start working with Ann regularly or on an as-needed basis.

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